The Lynch Labyrinth; ihavelynchsyndrome.com

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Three weeks out from going to Mayo; I feel as though I’m stuck in a Lynch labyrinth, feeling lost and discombobulated with every turn and thinking of the absolute worst. Getting older does not help but I have to have confidence in the fact that I’m doing every thing I possibly can to prevent cancer. Some days are better than others; I have a lot of positive things happening in my life right now and have much to be thankful for, especially when it comes to the blog… more...

What You Need To Know About Your Upper Endoscopy – ihavelynchsyndrome.com

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Annual screening for Lynch syndrome patients should include an upper endoscopy in order to rule out any cancer in the upper part of the gastrointestinal tract which includes the esophagus, stomach and duodenum. The doctor will ask you to open your mouth so that she or he may put a mouth piece in between your teeth to keep your mouth from closing before you are sedated through your IV. Immediately after, you will be sedated for this procedure and will not feel a thing. A thin, flexible tube… more...

“Today, write down all your fears and then throw them away.” -ihavelynchsyndrome.com

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So I’ve been taking it easy for the past several days; making a huge concerted effort to try and get out of my  head. I’ve been trying hard to partake in an electronic detox for the most part and do things which truly nourish me. I had acupuncture, have been spending time meditating, being with friends, exercising, and reading. It’s finally warming up in Chicago so I’ve been able to clean up my yard and plant some flowers; spring is definitely one of my favorite seasons; it signifies… more...

Fiber and Exercise for Colon Health by Dr. Frank Farrell – ihavelynchsyndrome.com

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Fiber and Exercise for Colon Health Anyone familiar with the ihavelynchsyndrome blog is well aware of good eating habits including consuming fiber and also the benefits of exercise.  As a guest blogger, I thought I would further discuss the world of dietary fiber along with highlighting the benefits of exercise and the detrimental impact of obesity. Fiber Fiber is important for colon health.  To fully understand the role of fiber in optimizing colon health, it is important to define fiber.  Fiber is often referred to as roughage or bulk.  Fiber is… more...

A Full Head of Fears Has No Space to Dream – ihavelynchsyndrome.com

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It’s finally warming up in Chicago after one of the most hellacious and longest winters ever. Sid (my canine child) and I took a long walk along the lakefront yesterday; I thought the fresh air and sunlight would do me some good and possibly exhaust me. As an added bonus, I received a free microdermabrasion, courtesy of the wind and sand. Well, the time outside wore me out and I fell asleep around 9pm. Then at 12:30am I woke up. So here I am, 2 am, writing. I’m… more...

Nyctophilia – ihavelynchsyndrome.com

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Well, I’ve decided I’m not an insomniac; I’m a nyctophiliac. Insomniac has such a negative connotation, besides, I do all my best work in the dark. “Nyctophiliac” is a stellar Greek word which translates to “friend of the night.” I went to bed at 9pm last night and fell asleep with the help of a couple of Klonopin pills and a book. I woke up at midnight feeling as though as I had slept 8 hours. Wide awake. Could not return to sleep. Rather than lie there and… more...

Everyone Has Flawed Genes – ihavelynchsyndrome.com

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Why the baby mountain gorilla pic, you ask? Because I can and they are the most adorable creatures (and one of the most endangered) on this planet. Love the hair. Last Saturday was Lynch Syndrome Awareness Day and it was nice to see everyone coming together on Twitter to support one another. I want to thank Chris4Life, West Middlesex Hospital, MyHealthShare, Alyssa Zygler, and the many others who supported my advocacy for Lynch Syndrome Awareness Day on their websites. Infinite gratitude to all of you! On top of that,… more...

Getting Schooled on #ColonCancer – Post by #RodrickSamuels; ihavelynchsyndrome.com

School is cool?  I’m getting schooled more and more each year about the effects of colon cancer in the African American community.  Now, to my peeps out there … colorectal cancer is cancer of the colon or rectum and is the second leading cause of cancer death in the United States for men and women combined. It accounted for 56,290 deaths in 2005. But 90 percent of all colorectal cancer cases and deaths are preventable by removing polyps (grape-like growths) with a colonoscopy before they become cancer. So what’s… more...

#Lynchsyndrome #AwarenessDay – March 22, 2014 Ihavelynchsyndrome.com

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Lynch Syndrome Awareness Day; March 22, 2014 Does your family have a history of early onset colon cancer? If so, your family may have Lynch syndrome.  Lynch syndrome may also increase one’s chances of developing cancers of the stomach, small intestine, liver, gallbladder ducts, upper urinary tract, kidneys, bladder, pancreas, brain, skin, and if you are a male, the prostate. Women with this syndrome also are at higher risk for developing cancer of the endometrium, ovaries, and breasts. Approximately up to 1,000,000 people in the U.S. have Lynch syndrome… more...

Fire – ihavelynchsyndrome.com

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I had a nightmare tonight…obviously a testament to the anxiety I’m experiencing; I was in a small plane with a handful of other people and it had to make an emergency landing. The wheels went out and the belly of the plane ran across a strip of concrete and eventually caught on fire. I was the only one who managed to jump out of the plane while it was still moving — everyone else perished; when I jumped out of the runaway plane, I landed directly on my two… more...

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